歡迎來到 ALK POSITIVE UK
由患者及其家人和朋友建立的註冊慈善機構。
ALK 陽性肺癌是一種相對罕見的肺癌,由間變性淋巴瘤激酶基因的異常重排引起。 這 絕大多數患者不吸煙, 一半的人年齡在 50 歲以下,有些人要年輕得多,而且大多數是女性。 成立於2018年,我們的宗旨是:
我们的愿景
我们希望英国所有被诊断患有 ALK 阳性肺癌的人:
尽可能得到最好的照顾
尽可能过上最好的生活
尽可能长寿
Our Mission
ALK Positive Lung Cancer (UK) exists to
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Support the ALK+ lung cancer patient community.
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Empower people affected by ALK-positive lung cancer.
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Advocate for improvements in the diagnosis, treatment and care of ALK-positive lung cancer across the UK.
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Represent the voice of the ALK-positive lung cancer community.
UK's only ALK-positive lung cancer charity that
Supports
We provide a forum where patients and their families can exchange information about their diagnosis and treatment, and where they can give and receive mutual support.
Empowers
We are a source of information for patients so that they are better informed about their condition and, as informed patients, they are empowered to ensure that their health care providers employ best practice.
Advocates
We advocate on behalf of patients to ensure that they receive a high level of care wherever they live in the UK and to promote improved patient outcomes. We campaign for early diagnosis so that more patients can be cured.
我们被 NICE(美国国家健康与护理卓越研究所)认可为一个可以就新的 ALK 阳性治疗进行咨询的组织。我们与其他相关组织合作,并开展了多个联合项目。我们参加肺癌肿瘤学家和护士的会议,在那里我们宣传我们可以为他们的患者提供的服务。
Our Values
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We are welcoming in our approach and put the needs and interests of patients with ALK-positive lung cancer and their families first, treating them with the respect and empathy that they deserve.
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We are passionate about our work – our passion is driven by a deep personal connection to ALK-positive lung cancer which means we are highly committed and determined.
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We always act with professionalism and integrity and our activities are based on the best available evidence.